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e_l_s_i_s

307

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Jul 20

A couple of hours in a time out from work to visit my dear friends – and look what they had planned! Definitely a plus to have a chance for rafting from the own front door. My 1st packrafting ever. I want more! ♡︎

I am lucky to have a pro photographer as a friend as well!

📷 @guillem_casanova
▫️▫️▫️
#paddling #rafting #packrafting #womenwhoexplore #outdoorgirl #outdoorlife #laplandfinland #discovermuonio #ourfinland #outdoorfinland #naturelover #friendsreunion #suomiretki #koskenlasku

A couple of hours in a time out from work to visit my dear friends – and look what they had planned! Definitely a plus to have a chance for rafting from the own front door. My 1st packrafting ever. I want more! ♡︎

I am lucky to have a pro photographer as a friend as well!

📷 @guillem_casanova
▫️▫️▫️
#paddling #rafting #packrafting #womenwhoexplore #outdoorgirl #outdoorlife #laplandfinland #discovermuonio #ourfinland #outdoorfinland #naturelover #friendsreunion #suomiretki #koskenlasku ...

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Jul 18

A few unforgettable experiences from the past work week. @nutsfi

I have always loved the polarday season and the nightless nights – despite the fact that it’s also a mosquito season as its best in the Arctic Circle.

I was happy to share the midnight sun with the two loyal team members, the photographers, @rami.valonen & @guillem_casanova .

Always a pleasure to work with them.

Note: check their pics from the nights ➪ a way better captures than mine!

Also @poppissuomela was in the same team at the NUTS Ylläs Pallas and NUTS Distance 300 events, but we didn’t end up in the same location (on the race courses). It’s worth to see his pics too!

📷 Yours truly, @e_l_s_i_s .

▫️▫️▫️
#nutsylläspallas #nutsdistance300 #nutsmtb240 #laplandfinland #onlyinlapland #discovermuonio #ourfinland #naturelover #midnightsun #nightlessnight #polkujuoksu #trailrunning
#photographer #ylläsoutdoorweek

A few unforgettable experiences from the past work week. @nutsfi

I have always loved the polarday season and the nightless nights – despite the fact that it’s also a mosquito season as its best in the Arctic Circle.

I was happy to share the midnight sun with the two loyal team members, the photographers, @rami.valonen & @guillem_casanova .

Always a pleasure to work with them.

Note: check their pics from the nights ➪ a way better captures than mine!

Also @poppissuomela was in the same team at the NUTS Ylläs Pallas and NUTS Distance 300 events, but we didn’t end up in the same location (on the race courses). It’s worth to see his pics too!

📷 Yours truly, @e_l_s_i_s .

▫️▫️▫️
#nutsylläspallas #nutsdistance300 #nutsmtb240 #laplandfinland #onlyinlapland #discovermuonio #ourfinland #naturelover #midnightsun #nightlessnight #polkujuoksu #trailrunning
#photographer #ylläsoutdoorweek ...

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Jun 23

I absolutely love warm weather. I love the heat.

Why?

☼ It represents some kind of freedom for me. I don’t need to think while I take a step to outside.

☼ At any other weather the front door is always a kind of an invisible border control to me.

☼ Am I prepared to the shock that the air might cause to my facial nerve?

♡ But this weather I just go in and out without even noticing the front door!

What is the best weather for you? Or your favorite season?

▫️▫️▫️

#helle #lakeview #summerishere #cabinlife #suomenluonto #naturelover #outdoorwomen #beachlife #swimlife #aamuuinti #naturegram #visittampere

#invisibleillness #trigeminalneuralgia #trigeminalneuralgiawarrior #spoonies #bodyandmind #ableism

I absolutely love warm weather. I love the heat.

Why?

☼ It represents some kind of freedom for me. I don’t need to think while I take a step to outside.

☼ At any other weather the front door is always a kind of an invisible border control to me.

☼ Am I prepared to the shock that the air might cause to my facial nerve?

♡ But this weather I just go in and out without even noticing the front door!

What is the best weather for you? Or your favorite season?

▫️▫️▫️

#helle #lakeview #summerishere #cabinlife #suomenluonto #naturelover #outdoorwomen #beachlife #swimlife #aamuuinti #naturegram #visittampere

#invisibleillness #trigeminalneuralgia #trigeminalneuralgiawarrior #spoonies #bodyandmind #ableism ...

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Jun 13

When you are working in event production and having a Trigeminal Neuragia disease.

And there are pandemic restrictions.

Luckily I had my sunglasses in the bag at the moment.

Cap, mask, earplugs (and the 🕶 when it shines).

I would be such an incognito person without my trademark, the 🌸 in my hair, on event days.

📷 @miskakoivumaki

@bodomtrail #bodomtrail #bufftrailtourfinland @trailtourfinland @buffsuomi
#polkujuoksu #trailrunning #LiveMoreNow #strongwomen #trailsisters #trailrace #ootd

#trigeminalneuralgia #tnawareness #facialpain #invisbleillness #raredisease #workingwoman

When you are working in event production and having a Trigeminal Neuragia disease.

And there are pandemic restrictions.

Luckily I had my sunglasses in the bag at the moment.

Cap, mask, earplugs (and the 🕶 when it shines).

I would be such an incognito person without my trademark, the 🌸 in my hair, on event days.

📷 @miskakoivumaki

@bodomtrail #bodomtrail #bufftrailtourfinland @trailtourfinland @buffsuomi
#polkujuoksu #trailrunning #LiveMoreNow #strongwomen #trailsisters #trailrace #ootd

#trigeminalneuralgia #tnawareness #facialpain #invisbleillness #raredisease #workingwoman ...

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May 19

There are things that no money can buy.
About the sunset last night at 10.30 pm.
📷 @e_l_s_i_s
▫️▫️▫️
#suomenluonto #finnishnature #suomenluonnonvalokuvaajat #laulujoutsen #whooperswan #birdphotography #naturephotography #naturelovers #sunsetphotography #lakeview #ulosluontoon #ourfinland #outdoorlife #visitfinland #visittampere #nofilterneeded #sonyrx100 @ourfinland @visittampereofficial

There are things that no money can buy.
About the sunset last night at 10.30 pm.
📷 @e_l_s_i_s
▫️▫️▫️
#suomenluonto #finnishnature #suomenluonnonvalokuvaajat #laulujoutsen #whooperswan #birdphotography #naturephotography #naturelovers #sunsetphotography #lakeview #ulosluontoon #ourfinland #outdoorlife #visitfinland #visittampere #nofilterneeded #sonyrx100 @ourfinland @visittampereofficial ...

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Apr 24

🇫🇮 Hyvää koiranpäivää! Kennelliitto on juhlistanut koiranpäivää vuodesta 2007. Vuoden 2021 teemana on aktiivinen elämä koiran kanssa. Tämä kuva Hallista on vaellukselta viime kesältä.

🇬🇧 Happy National Dog Day 2021! Hiking with Halli. The picture is taken at midnight in late June.

▫️▫️▫️
#koiranpäivä #tassuatoiseneteen #bordercollie #bordercolliesofinstagram #somethinglikebordercollies #naturelovers #ourfinland #suomenluonto #midnightsun #hikingwithdogs #campingwithdogs #adventurepup #lakeview #outdoorlife

🇫🇮 Hyvää koiranpäivää! Kennelliitto on juhlistanut koiranpäivää vuodesta 2007. Vuoden 2021 teemana on aktiivinen elämä koiran kanssa. Tämä kuva Hallista on vaellukselta viime kesältä.

🇬🇧 Happy National Dog Day 2021! Hiking with Halli. The picture is taken at midnight in late June.

▫️▫️▫️
#koiranpäivä #tassuatoiseneteen #bordercollie #bordercolliesofinstagram #somethinglikebordercollies #naturelovers #ourfinland #suomenluonto #midnightsun #hikingwithdogs #campingwithdogs #adventurepup #lakeview #outdoorlife ...

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Apr 8

I begun to understand why my mind and my body have found the cold waters as tempting or irresistible.

I guess my autonomous nerve system has craving the healing / positive stress caused by the cold water exposition. And without a need to cause pain or triggers straight to my facial nerves.

It sounds logical in my case but I am not a scientist, just a human animal.

Trust your instincts, obey your gut feeling.

📷 @vappuelisa

🧊🧊🧊
#avantouinti #icebath #iceswimming #relaxation #suomenluonto #outdoorfinland #naturelovers #cabinlife #outdoorwomen #bodymind #nervepain #trigeminalneuralgia #kolmoishermosärky

I begun to understand why my mind and my body have found the cold waters as tempting or irresistible.

I guess my autonomous nerve system has craving the healing / positive stress caused by the cold water exposition. And without a need to cause pain or triggers straight to my facial nerves.

It sounds logical in my case but I am not a scientist, just a human animal.

Trust your instincts, obey your gut feeling.

📷 @vappuelisa

🧊🧊🧊
#avantouinti #icebath #iceswimming #relaxation #suomenluonto #outdoorfinland #naturelovers #cabinlife #outdoorwomen #bodymind #nervepain #trigeminalneuralgia #kolmoishermosärky ...

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Mar 9

There are very few pictures of me while having pain attacks / flares caused by my Trigeminal Neuralgia disease.

1ST. Pics arent the thing in my mind when having killer pains, which demands the intravenous treatment from the local Emergency Room.
2ND. Those Moments are not the ones I really like to Restore in my memory as pictures. ⊙⊙ Take a look at the pic nr 2.

💡 Yet I like to share the awareness about the Rare Diseases like mine is. About the challenges the people like me confront in the society.

💡 Often in the ER the Doctors are not familiar with TN. Instead they’ve often suspected if Im a narcotic junkie. And even if Ive had my spouse or my parents accompany me to the hospital.

💡 It’s really humiliating!

💡 It’s terrible being there as helpless while suffering facial pains in level like 15/10. Sometimes had lost half of my ability to see or ability to keep up my balance sense. And then in that condition Im expected to teach the staff about my disease diagnosis and medical history. (Ive the papers with me nowadays.)

💡 Did you know that the health insurance system in Finland does not cover sick leave costs of many rare diseases?

💡Not even when you have a medical certificate & statement by a specialist doctor that you’re temporarily disabled by e.g. TN. They’re not recognized as illnesses at all by the system. No compensation.

💡 It’s a pity the treatments are slightly fruitless when not having afford for recovery – not even when it’s your doctor’s order.

👉 Ive done and I’ll do my best all the time I’m capable. My best in my work and to keep up my health. Ive tried and am trying in my life more than I could have even imagine it’s possible for no one. Yet I’d be grateful if I had a chance and an insurance to recover from severe pain conditions when it’s needed. Im strong but I dont have endless amounts of power to fight for my rights to make a comeback. ⚰︎

🙏🏼 Thank YOU for reading this far.
I’d really appreciate, if you shared this awareness forward every time you can.

#TrigeminalNeuralgia #FacialPain #RareDiseaseDay #FacialPainAwareness #invisibleillness #kasvokipu #kolmoishermosärky #harvinainensairaus #kuntavaalit2021 @migreeniyhdistys

There are very few pictures of me while having pain attacks / flares caused by my Trigeminal Neuralgia disease.

1ST. Pics arent the thing in my mind when having killer pains, which demands the intravenous treatment from the local Emergency Room.
2ND. Those Moments are not the ones I really like to Restore in my memory as pictures. ⊙⊙ Take a look at the pic nr 2.

💡 Yet I like to share the awareness about the Rare Diseases like mine is. About the challenges the people like me confront in the society.

💡 Often in the ER the Doctors are not familiar with TN. Instead they’ve often suspected if Im a narcotic junkie. And even if Ive had my spouse or my parents accompany me to the hospital.

💡 It’s really humiliating!

💡 It’s terrible being there as helpless while suffering facial pains in level like 15/10. Sometimes had lost half of my ability to see or ability to keep up my balance sense. And then in that condition Im expected to teach the staff about my disease diagnosis and medical history. (Ive the papers with me nowadays.)

💡 Did you know that the health insurance system in Finland does not cover sick leave costs of many rare diseases?

💡Not even when you have a medical certificate & statement by a specialist doctor that you’re temporarily disabled by e.g. TN. They’re not recognized as illnesses at all by the system. No compensation.

💡 It’s a pity the treatments are slightly fruitless when not having afford for recovery – not even when it’s your doctor’s order.

👉 Ive done and I’ll do my best all the time I’m capable. My best in my work and to keep up my health. Ive tried and am trying in my life more than I could have even imagine it’s possible for no one. Yet I’d be grateful if I had a chance and an insurance to recover from severe pain conditions when it’s needed. Im strong but I dont have endless amounts of power to fight for my rights to make a comeback. ⚰︎

🙏🏼 Thank YOU for reading this far.
I’d really appreciate, if you shared this awareness forward every time you can.

#TrigeminalNeuralgia #FacialPain #RareDiseaseDay #FacialPainAwareness #invisibleillness #kasvokipu #kolmoishermosärky #harvinainensairaus #kuntavaalit2021 @migreeniyhdistys ...

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Feb 6

💗 The world is so beautiful in the winters like this one! Yet it’s terrifying for for the people like me.

What is not convenient, when you’d like to do all kind of things outdoors, but you are both a single and a nerve ill?

You can’t spend time at the cottage on your own without getting the all people, who care about you, sick worried about you 24/7.

You are often in too medication to drive to places like nature parks.

Or a way too tired to organise yourself to xc skiing, to sled hill, to ice-swimming or to eat at a bonfire. Wanna know why?

There is so much to pack and so many things to remember when the sub 0° C-degrees are the one of the greatest trigger to your facial nerve.

Before I can open the door to go outside in winters, I must consider that I am very
likely to get a TN attack: get pain flares, loose my balance sense, my sight etc.
E•V•E•R•Y single time I wanna open that door.

I have to check that I have in my pocket or bag:

- medicines 💊
- mobile w/ full battery 📱>🚑/🚕
- emergency blanket / hand warmers 🥶
- Buff / balaclava if not wearing yet
- self-defense spray 👹
- some snacks 🥜
- ear plugs 📢🥁🗣
➕
- 💳 & 🔑
- and at the moment 😷🧼

And this was just a casual list when heading to urban districts.
Imagine if I go to wilderness...

▫️▫️▫️
#winterinfinland #naturelovers #outdoorfinland #ourfinland #ig_finland #outdoorwomen #outdoorlife #wildernessculture #girlswhohike #suomenluonto #ulkonaperillä #trigeminalneuralgia #trigeminalneuralgiaawareness #invisibleillness #kolmoishermosärky #spoonieproblems #strongwomen #ootd

💗 The world is so beautiful in the winters like this one! Yet it’s terrifying for for the people like me.

What is not convenient, when you’d like to do all kind of things outdoors, but you are both a single and a nerve ill?

You can’t spend time at the cottage on your own without getting the all people, who care about you, sick worried about you 24/7.

You are often in too medication to drive to places like nature parks.

Or a way too tired to organise yourself to xc skiing, to sled hill, to ice-swimming or to eat at a bonfire. Wanna know why?

There is so much to pack and so many things to remember when the sub 0° C-degrees are the one of the greatest trigger to your facial nerve.

Before I can open the door to go outside in winters, I must consider that I am very
likely to get a TN attack: get pain flares, loose my balance sense, my sight etc.
E•V•E•R•Y single time I wanna open that door.

I have to check that I have in my pocket or bag:

- medicines 💊
- mobile w/ full battery 📱>🚑/🚕
- emergency blanket / hand warmers 🥶
- Buff / balaclava if not wearing yet
- self-defense spray 👹
- some snacks 🥜
- ear plugs 📢🥁🗣
➕
- 💳 & 🔑
- and at the moment 😷🧼

And this was just a casual list when heading to urban districts.
Imagine if I go to wilderness...

▫️▫️▫️
#winterinfinland #naturelovers #outdoorfinland #ourfinland #ig_finland #outdoorwomen #outdoorlife #wildernessculture #girlswhohike #suomenluonto #ulkonaperillä #trigeminalneuralgia #trigeminalneuralgiaawareness #invisibleillness #kolmoishermosärky #spoonieproblems #strongwomen #ootd ...

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Dec 6

🇫🇮 Hyvää itsenäisyyspäivää! 🇫🇮
Happy Independence Day!

🤍 🤍 🤍

#itsenäisyyspäivä #självständighetsdag #finnishindependenceday #ourfinland #visitfinland #suomenluonto #finnishnature #homecountry #naturelovers #lakeview #nuuksionationalpark #pallasyllästunturinkansallispuisto #syötenationalpark #oulankanationalpark #uutelanluonnonpuisto #melkuttimet #teisko #sauna #outdoorlife #trailrunning #bordercollie #somethinglikebordercollies #hölkkämäyrät

🇫🇮 Hyvää itsenäisyyspäivää! 🇫🇮
Happy Independence Day!

🤍 🤍 🤍

#itsenäisyyspäivä #självständighetsdag #finnishindependenceday #ourfinland #visitfinland #suomenluonto #finnishnature #homecountry #naturelovers #lakeview #nuuksionationalpark #pallasyllästunturinkansallispuisto #syötenationalpark #oulankanationalpark #uutelanluonnonpuisto #melkuttimet #teisko #sauna #outdoorlife #trailrunning #bordercollie #somethinglikebordercollies #hölkkämäyrät ...

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Dec 4

💌 I haven't post anything lately. Here’s the reason why. There hasn’t been any tiny adventures or nice time for training. Just a recovery from the rTMS treatment – and from the pain attacks.

🧲 rTMS is shorten from repetitive Transcranial Magnetic Stimulation (🇫🇮 aivokuoren sähkömagneettinen stimulaatio) offered by the public healthcare system in Finland.

🙏 I am very grateful that I got a chance to rTMS after almost 2 years of very difficult conditions with my neurological illness Trigeminal Neuralgia.

🥰 The response has been great in short term and I have had multiple days in a row with no facial pain at all (the pain level 0). I have prevoius experienced that in my teenage. Can you imagine how wonderful feeling that was?!

🤔 Yet, it seems that I would need the treatment at least twice a week to keep the pain away. And it’s impossible: there are only 2 TMS devices in Helsinki University Hospital.

🧠 Also the treatment put the brains work out hard, which means that I have been incredibly tired and sleepy. I might have slept those days 17h / 24h.

👩‍⚕️ My doctors and I are trying to find a way to get me in the better condition. To condition in which I would suffer from the TN pain attacks rarer than once a week.

🧨 We know that the circle of more than one mental burnouts is a part of the case in which I have ended up in this severe pain condition…

🧘🏻‍♀️ Let’s see what the life will bring me next. I have manifested healing.

‼️ And hey, all you young and healthy guys out there, do NOT take your health as a granted in the time of the pandemic but nurture it. Do not begin to value your health only after you have lost it.

▫️▫️▫️

#invisibleillness #trigeminalneuralgia #trigeminalneuralgiawarrior #burnout #exhaustion #uupumus #spoonie #spoonielife #spooniecommunity #facialpain #themightysite #transcranialmagneticstimulation #rtms #publichealthcare #kolmoishermosarky #recovery #covid_19 #wearamask

💌 I haven't post anything lately. Here’s the reason why. There hasn’t been any tiny adventures or nice time for training. Just a recovery from the rTMS treatment – and from the pain attacks.

🧲 rTMS is shorten from repetitive Transcranial Magnetic Stimulation (🇫🇮 aivokuoren sähkömagneettinen stimulaatio) offered by the public healthcare system in Finland.

🙏 I am very grateful that I got a chance to rTMS after almost 2 years of very difficult conditions with my neurological illness Trigeminal Neuralgia.

🥰 The response has been great in short term and I have had multiple days in a row with no facial pain at all (the pain level 0). I have prevoius experienced that in my teenage. Can you imagine how wonderful feeling that was?!

🤔 Yet, it seems that I would need the treatment at least twice a week to keep the pain away. And it’s impossible: there are only 2 TMS devices in Helsinki University Hospital.

🧠 Also the treatment put the brains work out hard, which means that I have been incredibly tired and sleepy. I might have slept those days 17h / 24h.

👩‍⚕️ My doctors and I are trying to find a way to get me in the better condition. To condition in which I would suffer from the TN pain attacks rarer than once a week.

🧨 We know that the circle of more than one mental burnouts is a part of the case in which I have ended up in this severe pain condition…

🧘🏻‍♀️ Let’s see what the life will bring me next. I have manifested healing.

‼️ And hey, all you young and healthy guys out there, do NOT take your health as a granted in the time of the pandemic but nurture it. Do not begin to value your health only after you have lost it.

▫️▫️▫️

#invisibleillness #trigeminalneuralgia #trigeminalneuralgiawarrior #burnout #exhaustion #uupumus #spoonie #spoonielife #spooniecommunity #facialpain #themightysite #transcranialmagneticstimulation #rtms #publichealthcare #kolmoishermosarky #recovery #covid_19 #wearamask ...

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Sep 14

Hello Lapland, hello fall foliage. 💚💛🧡❤️
Can you spot a fog bow?
I am hiking with my best trail buddy 🐺 in Pallas–Yllästunturi National Park.
This place can amaze me every time. These fells, these colors, these playing reindeers.
•••
#finnishlapland #visitlapland #finnishnature #fallfoliage #fallcolors #naturelovers #ourfinland #womenwhohike #outdoorswomen #trailchix #lapland #hikingwithdogs #adventuredog #bordercollie #somethinglikebordercollies #reindeer #autumncolors #ruska #ulkonaperillä #thebestgripontheplanet #sonyrx100 @luontoon.fi

Hello Lapland, hello fall foliage. 💚💛🧡❤️
Can you spot a fog bow?
I am hiking with my best trail buddy 🐺 in Pallas–Yllästunturi National Park.
This place can amaze me every time. These fells, these colors, these playing reindeers.
•••
#finnishlapland #visitlapland #finnishnature #fallfoliage #fallcolors #naturelovers #ourfinland #womenwhohike #outdoorswomen #trailchix #lapland #hikingwithdogs #adventuredog #bordercollie #somethinglikebordercollies #reindeer #autumncolors #ruska #ulkonaperillä #thebestgripontheplanet #sonyrx100 @luontoon.fi ...

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Jul 30

Challenge accepted @runningmira !

Olen itsekin kohdannut naisiin kohdistuvaa fyysistä väkivaltaa. Siihen tämä haaste liittyy.

Lue lisää esim. @endorfiininmetsastaja tai @minjakoskela postauksista.

#womenempoweringwomen #challegeaccepted #againstviolence

Challenge accepted @runningmira !

Olen itsekin kohdannut naisiin kohdistuvaa fyysistä väkivaltaa. Siihen tämä haaste liittyy.

Lue lisää esim. @endorfiininmetsastaja tai @minjakoskela postauksista.

#womenempoweringwomen #challegeaccepted #againstviolence ...

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Jul 14

Love exists in true friendships. The hardest part is to fully open up to that love. To be loved in the times even when you are not easiest to love. To have a safe place to be vulnerable.

They don’t turn their back to you while you are leaving behind but they hold your hand and accept your timid steps. They stand by you all the way.

I have that kind of friends. I can be a friend like that. To express and radiate love and acceptance. To create the friendships that are safe places to my close people.

❤️

I have known her since I was born. She’s 6 months older than me. We played at the same yard while we’re babies and toddlers.

Her mother remember how I hadn’t learnt to walk yet, but I was able to crawl faster than she walked – unless when her mum had some pancake as a treat for her if she walked. I was fool enough not to demand pancakes to move forward. 🥞

On Sunday we went for swim to Nuuksio. For certainty I put some cookies and snacks to my backbag ... 😜

She is still my trusted, loyal, best friend after all these 36.5 years. I am blessed and full of gratitude about got her in my life.

♾ Friends 4-ever ♾

Love exists in true friendships. The hardest part is to fully open up to that love. To be loved in the times even when you are not easiest to love. To have a safe place to be vulnerable.

They don’t turn their back to you while you are leaving behind but they hold your hand and accept your timid steps. They stand by you all the way.

I have that kind of friends. I can be a friend like that. To express and radiate love and acceptance. To create the friendships that are safe places to my close people.

❤️

I have known her since I was born. She’s 6 months older than me. We played at the same yard while we’re babies and toddlers.

Her mother remember how I hadn’t learnt to walk yet, but I was able to crawl faster than she walked – unless when her mum had some pancake as a treat for her if she walked. I was fool enough not to demand pancakes to move forward. 🥞

On Sunday we went for swim to Nuuksio. For certainty I put some cookies and snacks to my backbag ... 😜

She is still my trusted, loyal, best friend after all these 36.5 years. I am blessed and full of gratitude about got her in my life.

♾ Friends 4-ever ♾ ...

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Jun 7

Time.

What would you do, if you got +21 hours more time to spend in every week?
It’s so fascinating idea to get some extra time... 💓

Due to my daily 🔺-medication, I need on average 11 hours of sleep every single night.
When normal adult needs on average 7–8 hours of sleep / 24h, it means that they have 21 hours more, than me, to use awake weekly.
No wonder, I have had a feeling, that if I am working or studying, I have no time to do anything else in my life – except necessary homework.
No wonder I have had feeling that it’s quite exhausting and lonely to live in this way.
And no wonder that I have burned out so often in my adult life.
Yet, my rare and invisible nerve illness is not acknowledged as an illness which decreases the capacity or ability to work.
Even though it demands either the strong medication or medical treatment in a hospital.
That’s why I have had to live like a normal people but I have on average 3 hours less on my stock per day.

That’s why I have became so exhausted while trying to be competent in my life.
And that’s why I am curious to know what ”normal people” would like to do with those extra hours if you got them?
The fact is that I am ashamed about my condition. I try to hide my disability from other people. It’s not easy to write about it.
I just hope that telling about these issues would spread the understanding.
Perhaps someone – with or without the similar condition – finds my post as worthwhile. ▫️▫️▫️ #invisibleillness #trigeminalneuralgia #trigeminalneuralgiawarrior #burnout #exhaustion #uupumus
#athomeoutdoors #outdoorwomen #finnishnature #ourfinland #outdoorlife #socialisolation #koronakevät #ulkonaperillä #naturelovers #bordercollie #dogmom
#spoonie #spoonielife #spooniecommunity #themightysite

Time.

What would you do, if you got +21 hours more time to spend in every week?
It’s so fascinating idea to get some extra time... 💓

Due to my daily 🔺-medication, I need on average 11 hours of sleep every single night.
When normal adult needs on average 7–8 hours of sleep / 24h, it means that they have 21 hours more, than me, to use awake weekly.
No wonder, I have had a feeling, that if I am working or studying, I have no time to do anything else in my life – except necessary homework.
No wonder I have had feeling that it’s quite exhausting and lonely to live in this way.
And no wonder that I have burned out so often in my adult life.
Yet, my rare and invisible nerve illness is not acknowledged as an illness which decreases the capacity or ability to work.
Even though it demands either the strong medication or medical treatment in a hospital.
That’s why I have had to live like a normal people but I have on average 3 hours less on my stock per day.

That’s why I have became so exhausted while trying to be competent in my life.
And that’s why I am curious to know what ”normal people” would like to do with those extra hours if you got them?
The fact is that I am ashamed about my condition. I try to hide my disability from other people. It’s not easy to write about it.
I just hope that telling about these issues would spread the understanding.
Perhaps someone – with or without the similar condition – finds my post as worthwhile. ▫️▫️▫️ #invisibleillness #trigeminalneuralgia #trigeminalneuralgiawarrior #burnout #exhaustion #uupumus
#athomeoutdoors #outdoorwomen #finnishnature #ourfinland #outdoorlife #socialisolation #koronakevät #ulkonaperillä #naturelovers #bordercollie #dogmom
#spoonie #spoonielife #spooniecommunity #themightysite ...

View

May 1

Smile, if you are able, like in 3rd pic. 🥰
Smiling this seldom has happened last maybe in Autumn 2012... I have to say this has been an extra difficult spring considering my neurological condition.
Yet I have needed those moments to take a breath – even a short moment – in healing nature.
Thanks to my sister for this moment in Porkkalanniemi peninsula. Not a big adventure but a needed one.

We just walked 2 minutes away from my car and put up the tent onto the rock. Only so that I could sleep in the night outdoors. In a safe troupe. (Better safe than sorry.) Thank you sister @emmustelma and Mother Earth. •
•

#smile #athomeoutdoors #outdoorwomen #finnishnature #ourfinland #outdoorlife #socialisolation #koronakevät #nukuyöulkona #ulkonaperillä #girlswhohike #porkkalanniemi #naturelovers #adventurelife #camping #campingwithdogs #invisibleillness #trigeminalneuralgia #facetodaytogether

Smile, if you are able, like in 3rd pic. 🥰
Smiling this seldom has happened last maybe in Autumn 2012... I have to say this has been an extra difficult spring considering my neurological condition.
Yet I have needed those moments to take a breath – even a short moment – in healing nature.
Thanks to my sister for this moment in Porkkalanniemi peninsula. Not a big adventure but a needed one.

We just walked 2 minutes away from my car and put up the tent onto the rock. Only so that I could sleep in the night outdoors. In a safe troupe. (Better safe than sorry.) Thank you sister @emmustelma and Mother Earth. •
•

#smile #athomeoutdoors #outdoorwomen #finnishnature #ourfinland #outdoorlife #socialisolation #koronakevät #nukuyöulkona #ulkonaperillä #girlswhohike #porkkalanniemi #naturelovers #adventurelife #camping #campingwithdogs #invisibleillness #trigeminalneuralgia #facetodaytogether ...

View

Apr 1

Things that will always have a special place in my heart:
Lake Garda in 🇮🇹
Scuderia Castello (My 2nd home) 🐎
Parco Alto Garda ⛰
and
ALAIN the horse of my life. ❤️ Unfortunately the life gave me lemons and sent me back to Finland ahead of time. I am trying to make lemonade out of this all... 🍋
But damn it’s freezing here 🇫🇮. Maybe I should try popsicles instead. 🥶 These pics are taken in mid winter (January 2020).
.
📷 @jokkekcom
.
#tb #trailriding #horseriding #travelbyhorse #outdoorlife #adventureriding #horsetrekking #arabianhorse #outdoorwomen #mountaingirls #naturelovers #ratsastusvaellus #lakegardaitaly #lagodigarda #horsesofinstagram #gardaoutdoors #fjallravenfi #ulkonaperillä
@scuderiacastello
@gardaoutdoors
@visit.garda
Note:
@fjallravensuomi varusteet erinomaisia myös vaellusratsastukseen! Testattu on putoamisten kera. 😅(Ei yhteistyö)

Things that will always have a special place in my heart:
Lake Garda in 🇮🇹
Scuderia Castello (My 2nd home) 🐎
Parco Alto Garda ⛰
and
ALAIN the horse of my life. ❤️ Unfortunately the life gave me lemons and sent me back to Finland ahead of time. I am trying to make lemonade out of this all... 🍋
But damn it’s freezing here 🇫🇮. Maybe I should try popsicles instead. 🥶 These pics are taken in mid winter (January 2020).
.
📷 @jokkekcom
.
#tb #trailriding #horseriding #travelbyhorse #outdoorlife #adventureriding #horsetrekking #arabianhorse #outdoorwomen #mountaingirls #naturelovers #ratsastusvaellus #lakegardaitaly #lagodigarda #horsesofinstagram #gardaoutdoors #fjallravenfi #ulkonaperillä
@scuderiacastello
@gardaoutdoors
@visit.garda
Note:
@fjallravensuomi varusteet erinomaisia myös vaellusratsastukseen! Testattu on putoamisten kera. 😅(Ei yhteistyö) ...

View

Mar 4

Cherish the good times. ☀️ We have had good times at Lake Garda, but it’s time to go home. 🇫🇮 A month ago I got bad news: Halli has a mammary gland tumour. And it’s a fast growing one.
My trail buddy must be surgically operated. Because the surgical wounds will be big and maybe painful, it’s better to do it in our home country. Otherwise Halli would need to travel through out the Europe with the wounds.
So we come back home earlier than we had planned.
I just keep my fingers crossed that the quality of the tumour is good instead of dangerous. She is my family. ❤️

EDIT: Halli’s tumour was not a cancer one. 🙏🏼

•• #outdoorwomen #hikingwithdogs
#womenwhohike #outdoorlife #adventurelife #adventurepuppy #naturelovers #wilderness #ulkonaperillä #gardaoutdoors #visitgarda #parcoaltogarda
#bordercollie #bordercolliesofinstagram #somethinglikebordercollies
#dogmom #bestfriend

Cherish the good times. ☀️ We have had good times at Lake Garda, but it’s time to go home. 🇫🇮 A month ago I got bad news: Halli has a mammary gland tumour. And it’s a fast growing one.
My trail buddy must be surgically operated. Because the surgical wounds will be big and maybe painful, it’s better to do it in our home country. Otherwise Halli would need to travel through out the Europe with the wounds.
So we come back home earlier than we had planned.
I just keep my fingers crossed that the quality of the tumour is good instead of dangerous. She is my family. ❤️

EDIT: Halli’s tumour was not a cancer one. 🙏🏼

•• #outdoorwomen #hikingwithdogs
#womenwhohike #outdoorlife #adventurelife #adventurepuppy #naturelovers #wilderness #ulkonaperillä #gardaoutdoors #visitgarda #parcoaltogarda
#bordercollie #bordercolliesofinstagram #somethinglikebordercollies
#dogmom #bestfriend ...

View

Mar 1

All trailrunners and hikers!
It’s worth of noticing that here we have an endless amount of beautiful trails to explore the year around.
Only the Parco dell Alto Garda is so huge that one season is not long enough to go all the great mountain trails and peaks or stunning valleys.
And if you get enough of the west side of the Lake, there’s the great Monte Baldo area waiting for you (and also for me so far) to conquer it. Yes, the snow-capped mountain in the pics.
Not forgetting the trails and Via Ferratas close to Village Arco in North... And you can enjoy all these in the peaceful nature when it’s a low-season in tourism!

Just choose your activity...🧘🏻‍♀️🏃🏻‍♀️🧗🏻‍♀️🚵🏻‍♀️🏊🏻‍♀️🪂🎣🏇🏕🛶🗺 ••
📷 1,3,6-8 @jokkekcom ••
#trailrunning #mountainrunning #trailfi #polkujuoksu #hiking #hölkkämäyrät #backpacking #hikingwithdogs #womenwhohike #outdoorwomen #trailsisters #mountaineering #mountaingirls #outdoorlife #adventurelife #adventurerun #naturelovers #wilderness #alpinismo #correre #bordercollie #ulkonaperillä #sziolsfinland #thebestgripontheplanet #gardaoutdoors #visitgarda #parcoaltogarda @gardaoutdoors

All trailrunners and hikers!
It’s worth of noticing that here we have an endless amount of beautiful trails to explore the year around.
Only the Parco dell Alto Garda is so huge that one season is not long enough to go all the great mountain trails and peaks or stunning valleys.
And if you get enough of the west side of the Lake, there’s the great Monte Baldo area waiting for you (and also for me so far) to conquer it. Yes, the snow-capped mountain in the pics.
Not forgetting the trails and Via Ferratas close to Village Arco in North... And you can enjoy all these in the peaceful nature when it’s a low-season in tourism!

Just choose your activity...🧘🏻‍♀️🏃🏻‍♀️🧗🏻‍♀️🚵🏻‍♀️🏊🏻‍♀️🪂🎣🏇🏕🛶🗺 ••
📷 1,3,6-8 @jokkekcom ••
#trailrunning #mountainrunning #trailfi #polkujuoksu #hiking #hölkkämäyrät #backpacking #hikingwithdogs #womenwhohike #outdoorwomen #trailsisters #mountaineering #mountaingirls #outdoorlife #adventurelife #adventurerun #naturelovers #wilderness #alpinismo #correre #bordercollie #ulkonaperillä #sziolsfinland #thebestgripontheplanet #gardaoutdoors #visitgarda #parcoaltogarda @gardaoutdoors ...

View

Feb 29

Greetings from the outdoor paradise – Lake Garda! ☀️
I know that there’s a lot of bad news from Italy now. Yet I have had an awesome winter season in Italy since December.
The lake has been lukewarm 6–8°C for swimming. And so pure and beautiful itself. The beach is not crowded by other tourists and you can swim only with your dog and the familiar swan couple. It’s luxurious I would say. 🦢🦢
••
#outdoors #gardaoutdoors #lakegarda #lagodigarda #visitgarda #winterseason #outdoorlife #ulkonaperillä #openwaterswimming #iceswimming #beachlife #outdoorwomen #bordercollie
#somethinglikebordercollies
@gardaoutdoors

Greetings from the outdoor paradise – Lake Garda! ☀️
I know that there’s a lot of bad news from Italy now. Yet I have had an awesome winter season in Italy since December.
The lake has been lukewarm 6–8°C for swimming. And so pure and beautiful itself. The beach is not crowded by other tourists and you can swim only with your dog and the familiar swan couple. It’s luxurious I would say. 🦢🦢
••
#outdoors #gardaoutdoors #lakegarda #lagodigarda #visitgarda #winterseason #outdoorlife #ulkonaperillä #openwaterswimming #iceswimming #beachlife #outdoorwomen #bordercollie
#somethinglikebordercollies
@gardaoutdoors ...

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